Eyona Ninzi Eyona Ncinci Imithi Yogqirha eMthethweni kwiLizwe

Icandelo lokuphuhlisa nokuthengisa imishishini yinkampani enkulu, kunye neenkampani ezizisa iibhiliyoni kwingeniso yonyaka. Ehlabathini lonke, ukuthengiswa kwezidakamizwa zonyango kulindeleke ukuba kudlule i-$ 1.3 trillion ngo-2018. Ukuthengiswa kwe-Pharma kukhulu kunomkhiqizo wekhaya owenziwe ngamazwe angama-15, idibeneyo. Kwabanye abantu, ngakumbi abo banezifo ezingaqhelekanga, iindleko zala mayeza enyantya zinokuthandwa. Iziyobisi zengcwaba, imichiza eyenzelwe ukunyanga izifo ezithathwa ngabantu abambalwa kuphela, zinokubhatala ngokulula kumanani amathandathu.

Ezinye iinkampani ze-inshorensi aziyi kugubungela yonke into okanye inxalenye ebalulekileyo yalezi yobisi, ukushiya intsapho kunye nabantu abachaphazelekayo ukuba baphathe iindleko ngokwabo. Lo ngumthwalo obalulekileyo wemali kwabaninzi kwaye ubangele ukuhlolisisa kakhulu kwi-shishini.

Amanye amanyathelo asetyenziswe ukukhupha iindleko, njengemibutho engekho inzuzo kunye neenkqubo zoncedo zoncedo. Nangona ezi zinokuba luncedo kwabanye, ipesenteji enkulu yabantu ayifanelekanga kwaye kufuneka ihlawule ipokothini kule miyeza yokulondoloza ubomi.

  • 01 Glybera

    Ngo-2015, i-Glybera yashiya i-Soliris ukuba ibe yiziyobisi ezibi kakhulu kwihlabathi. Iindleko zale mayeza zingaphezu kwe-1.2 yezigidi ngonyaka. Ayikavunyelwanga eUnited States, isetyenziswe eYurophu ukunyanzelisa i-lipoprotein lipase, iimeko ezichaphazela abantu abayi-1,200 eYurophu kunye nezigidi ezigidi emhlabeni jikelele.

    Umenzi walo, UniQure, wathi ngo-2017 ukuba kwakungayi kuba kuhlaziywa kwegunya lokuthengisa izidakamizwa eYurophu. Nangona ixabiso lentengo ephezulu, uGlybera akazange abanjwe ngenxa yokufunwa komonde.

  • 02 Soliris

    I-Soliris inokugulisa izigulane ukuya kwii-700,000 zamawaka ngonyaka, isisetyenziswa esisetyenziswayo ukunyanga i-hemoglobinuria ye-paroxysmal nocturnal. Abantu abayi-8 000 kuphela kwihlabathi banemeko. Isi sifo sitshabalalisa iiseli ezibomvu zegazi, ezibangela izigulane ukuba zibe ne-infections, i-anemia, kunye nama-blood clots.

    NgoSeptemba 2017, amagunya aseCanada ayala umenzi we-Alexion Pharmaceuticals ukuba anciphise intengo ka-Soliris, ebiza ngokuba yinto engaphezulu.

  • 03 Ukuhlaselwa

    I-Elaprase isetyenziselwa ukuphatha i-Hunter Syndrome, imeko engaqhelekiyo echaphazelekayo kubantu abangama-500 e-United States ekhusela umsebenzi wengqondo kunye nophuhliso lomzimba. Iindleko zonyaka zonyango zingaphezu kwama-500,000.

  • 04 Naglazyme

    I-Naglazyme isetyenziselwa ukunyanga iMaroteaux-Lamy Syndrome, imeko echaphazela izicubu ezinxulumene. Iimpawu eziqhelekileyo ziquka ukutshatyalaliswa kwezinto, ukukhutshwa, ukukhutshwa, ukukhathazeka, ukukhathazeka kweengxaki kunye nentlungu engqondweni. Iyeza libiza ngaphezu kwama-365,000.

  • 05 Cinryze

    I-Cinryze isebenzela imeko ebizwa nge-angioedema, isifo esichaphazela omnye kubantu abangama-50,000 e-United States. Kwindleko ye-$ 350,000 ngonyaka, iyeza lilawula ukuvuvukala kwezandla, umhombo, nesisu.

  • 06 Folotyn

    I-Folotyn yonyango lwenqweno engavumelekanga yomhlaza obizwa ngeT-cell lymphoma. Kuthathwa njengenyango yokugqibela yonyango ehlala kwiiveki ezintandathu. Ngeendleko ezingaphezu kwama-320,000, ayizange iboniswe ukunyusa ubomi ixesha elide, ngoko isetyenziswa rhoqo kwiimeko ezimbi kuphela.

  • 07 Acthar

    U-Acthar unqunywe ukuba uphathwe ngokukhawuleza okanye ukuxhamla. Le meko ichaphazela abantwana phakathi kweminyaka emine ne-11 ubudala, kodwa u-Acthar uvunyiwe ukuphatha abantwana ukuya kwiminyaka emibini ubudala. Kwakhona kusetyenziswa ukunyanga iindidi ezahlukeneyo kubantu abadala, kubandakanywa i-multiple sclerosis. Ixabisa ngaphezu kwama-200,000 ngonyaka.

    Ucwaningo lwango-2017 kwi-Journal ye-American Medical Associaton lubuze ukuphumelela kuka-Acthar, ebonisa ukuba ayiphumelelanga ngakumbi kunezinye iindleko eziphantsi kakhulu.

  • 08 Myozyme

    I-Myozyme yonyango lwePompe, isifo esingaqhathananga nesinye isifo esihlasela intliziyo kunye nezihlunu zesifo. Xa ichaphazela iintsana, ukufa kufuthi kubetha ngonyaka wokuqala. I-Myozyme yi-enzyme ethile ye-lysosomal glycogen ebonisa ukuba kwizifundo zandise ukuphila kwaye zanciphisa izigulane zithembele kwiindawo zokuqhuba umoya. Iindleko zayo zonyaka ziphakathi kwe-100,000 ne-300,000 zamawaka ngonyaka. Okwamanje ayitholakali e-US

  • Ukufumana ibhalansi